Gool, Kees Van; Norman, Richard; Delatycki, Martin B; … - Centre for Health Economics Research & Evaluation … - 2011
Cystic fibrosis (CF) is the most common life-shortening genetic disease, with an incidence of 1 in 2500 and carrier frequency of 1 in 25, amongst Caucasians (Welsh, Ramsey et al. 2001). With recent advances in treatment, most children with CF now can expect to survive into adulthood and life...