Imagine an online work environment where researchers have direct and immediate access to myriad data sources and tools and data management resources, useful throughout the research lifecycle. This is our vision for the next generation of the Dataverse Network: an Open Science Platform (OSP). For...

We linked names and contact information to publicly available profiles in the Personal Genome Project. These profiles contain medical and genomic information, including details about medications, procedures and diseases, and demographic information, such as date of birth, gender, and postal...

Given the medical billing framework and proposed meaningful uses for the national health information infrastructure, this paper shows how the billing framework can strategically help achieve meaningful uses quickly.The existing medical billing framework has national connectivity, and its...

Advances in camera and computing equipment hardware in recent years have made it increasingly simple to capture and store extensive amounts of video data. This, among other things, creates ample opportunities for the sharing of video sequences. In order to protect the privacy of subjects visible...

Following the events of September 11, 2001, many in the American public falsely believe they must choose between safety and privacy. This paper proposes an approach to technology (termed “Selective Revelation”) that allows data to be shared for surveillance purposes such that shared data...

Following the events of September 11, 2001, many in the American public falsely believe they must choose between safety and privacy. This paper proposes an approach to technology (termed “Selective Revelation”) that allows data to be shared for surveillance purposes such that shared data...

Among the vast amounts of personal information published on the World Wide Web (“Web”) and indexed by search engines are lists of names of people. Examples include employees at companies, students enrolled in universities, officers in the military, law enforcement personnel, members of...

Consider a data holder, such as a hospital or a bank, that has a privately held collection of person-specific, field structured data. Suppose the data holder wants to share a version of the data with researchers. How can a data holder release a version of its private data with scientific...

Today most organizations release and receive medical data with all explicit identifiers, such as name, address, and phone number, removed in the incorrect belief that patient confidentiality is maintained because the resulting data look anonymous. We examine three computer programs that do...

Sharing medical data with researchers, economists, policy makers, administrators and other secondary viewers, immediately summons for consideration the dichotomy between the recipient’s needs and disclosure risk. Finding the optimal balance between the suppression of details within the...