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Search: subject:"Spinal muscular atrophy"
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Spinal muscular atrophy
2
Caregiver
1
Disability rights
1
Disease modifying treatment
1
Duchenne muscular dystrophy
1
EQ-5D-5L
1
Expressivist objection
1
Genetic risk
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Healthcare burden
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Mortality
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Newborn screening
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Proxy
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Qualitative
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Spinal Muscular Atrophy
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UK
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Au, Ivan C. H.
1
Boardman, Felicity Kate
1
Chan, Godfrey C. F.
1
Chan, Sophelia H. S.
1
Dai, Yi
1
Dong, Dong
1
Ng, Shamay S. M.
1
Tsang, Hector W. H.
1
Wong, Carlos K. H.
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Wong, Wilfred
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Wu, Tingting
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Xu, Richard Huan
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Yu, Michael K. L.
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The European journal of health economics
2
Social Science & Medicine
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ECONIS (ZBW)
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1
Significant healthcare burden and life cost of
spinal
muscular
atrophy
: real-world data
Chan, Sophelia H. S.
;
Wong, Carlos K. H.
;
Wu, Tingting
; …
- In:
The European journal of health economics
24
(
2023
)
8
,
pp. 1373-1382
Persistent link: https://www.econbiz.de/10014427240
Saved in:
2
Assessing validity of the EQ-5D-5L proxy in children and adolescents with Duchenne muscular dystrophy or
spinal
muscular
atrophy
Xu, Richard Huan
;
Dai, Yi
;
Ng, Shamay S. M.
;
Tsang, …
- In:
The European journal of health economics
25
(
2024
)
1
,
pp. 103-115
Persistent link: https://www.econbiz.de/10014560386
Saved in:
3
The expressivist objection to prenatal testing: The experiences of families living with genetic disease
Boardman, Felicity Kate
- In:
Social Science & Medicine
107
(
2014
)
C
,
pp. 18-25
) conducted in the UK between 2007 and 2009 with families and individuals living with a genetic disease,
Spinal
Muscular
Atrophy
…
Persistent link: https://www.econbiz.de/10010783779
Saved in:
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