Rabeharisoa, Vololona; Callon, Michel; Filipe, Angela … - Centre de Sociologie de l'Innovation (CSI), MINES ParisTech - 2012
Highlights the emergence of a "hybrid collective model" of collaboration between patients and experts through a systematic study in the field of rare diseases in France and Portugal, with attention to the reflexive work carried out by patients' organizations on the notion of rareness.