Linertová, Renata; Serrano-Aguilar, Pedro; … - In: Health Policy 108 (2012) 1, pp. 19-26
The BURQOL-RD project is intended to develop a disease based model capable of quantifying the socio-economic burden and health-related quality of life for patients with rare diseases (RDs) and their caregivers in Europe. We described the methodology used to select a set of 10 RDs to be...