Background Pemphigus is a chronic autoimmune blistering disease of the skin and mucosa severely impairing patients’ health-related quality of life (HRQoL). To date, no studies have measured subjective well-being in terms of life satisfaction in pemphigus. Our main objective was to evaluate...

Background The assessment of health-related quality of life (HRQoL) in patients with pemphigus is now of increasinginterest due to the availability of highly effective new therapies. Preference-based HRQoL values or health utilitiesrequired for medical and financial decision-making are not yet...

Background The Dermatology Life Quality Index (DLQI) rates ‘not relevant’responses (NRRs) as the item on the questionnaire having no impact on thepatients’ lives at all. The DLQI-Relevant (DLQI-R) is a recently developed scoringthat adjusts the total score of the questionnaire for the...

Background Numerous generic, skin‐ and disease‐specific health‐related quality of life (HRQoL) measures are available for patients with hidradenitis suppurativa (HS). Yet, robust psychometric evidence is lacking in many aspects of these outcome measures. Objectives We sought to determine...

Objectives: In a growing number of countries, patient involvement in medical decisions is considered a cornerstone of broader health policy agendas. This study seeks to explore public preferences for and experiences with participation in treatment decisions in Hungary. Methods: A nationally...

Background The nine-item Shared Decision Making Questionnaire (SDM-Q-9) is one of the most frequently applied instruments for assessing patients’ involvement in medical decision-making. Our objectives were to develop a Hungarian version of SDM-Q-9, to evaluate its psychometric properties and...