The purpose of this study, sponsored by the Office of the Assistant Secretary for Planning and Evaluation at the U.S. Department of Health and Human Services as part of the Center on Excellence in Disabilities Research, is to describe parents’ perspectives on the care received at medical...

The studies summarized in this document were sponsored by the Office of the Assistant Secretary for Planning and Evaluation at the U.S. Department of Health and Human Services as part of the Center on Excellence in Disabilities Research, and had the following goals: (1) test the relationship...

Out of every five persons in a commercial health insurance plan who has a chronic condition, one is a child. This first brief in a new series profiles children with disabilities and chronic conditions in commercial plans, who account for more than 70 percent of every dollar spent on child...

The research shows fairly good coverage of medical expenses and needs before the transition to adulthood.

The data suggest substantial variation in the need for caregiving.

There is little national information on the policies and procedures used by states to regulate residential treatment facilities for adults and children with mental illness. As a result, policymakers and program administrators face major difficulties in determining both the effectiveness of...

This brief, the fourth in a series on critical issues involved in caring for children with special health care needs, notes that nearly three-quarters of parents who need professional care coordination services for their child say they do not get enough help—if they get any at all....