This paper deals with the organizational change in the provision of care for rare diseases, and the creation of a new structure: the centre of reference for rare diseases (CRMR). It aims to show that this new organization of care introduces a new authority within the healthcare organizational...

This working paper offers an evaluation of the performance of the ports of the Seine Axis (Le Havre, Rouen, Caen and Paris), as well as an analysis of the impact of the ports on their territory and an assessment of policies and governance in this field. It examines declining port performance in...