Budych, Karolina; Helms, Thomas M.; Schultz, Carsten - In: Health Policy 105 (2012) 2, pp. 154-164
Empirical research shows that patients with severe illnesses prefer the physician to dominate decision processes and provide the information needed. However, in rare diseases, due to the low prevalence and the lack of expertise, the patient is forced to become knowledgeable about his own disease...