Pooling of Health Data For Biomedical Research
This thesis investigates the relationship between health data pools and innovation in biomedical research. Health data pool is a unique way of collecting data from numerous sources into a centralized administrator to analyze the data and provide valuable insights to the contributors. The creation of health data pools could help drive innovation in biomedical research if the data is widely available within the industry. Despite the potential benefits of pooling, researchers encounter several barriers to health data sharing. Therefore, this thesis focuses on the benefits of data sharing for biomedical research while highlighting the barriers and challenges of creating data pools in the European Union. The aim of the thesis is to examine how health data pools are controlled under the European Union, particularly within the General Data Protection Regulation. It also examines national regulations of health data pools in two of the most medically advanced European countries: Denmark and Germany, two EU members that adopted contrasting data sharing and protection models. After examining the policies of both countries, the results have shown that Denmark has higher innovation rate than Germany due to its data-driven healthcare system and the high reliance on data pools to promote innovation. Furthermore, a determination of the opportunities and limitations of both models are discussed. Finally, recommendations are made of the optimal method for promoting health data pools while ensuring the privacy and protection of the data used
Year of publication: |
[2022]
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Authors: | Gaafar, Roba |
Publisher: |
[S.l.] : SSRN |
Subject: | Medizin | Medical sciences | Gesundheit | Health | Forschung | Research | Gesundheitsökonomik | Health economics |
Saved in:
freely available
Extent: | 1 Online-Ressource (74 p) |
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Type of publication: | Book / Working Paper |
Language: | English |
Notes: | Nach Informationen von SSRN wurde die ursprüngliche Fassung des Dokuments February 8, 2022 erstellt |
Other identifiers: | 10.2139/ssrn.4029353 [DOI] |
Source: | ECONIS - Online Catalogue of the ZBW |
Persistent link: https://www.econbiz.de/10013293299
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